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Archive for the ‘Writings’ Category

Arlington Grieves: Selfish Negative Victory? No!

Saturday, December 6th, 2014

How sad it is to be an Arlingtonian now; to have witnessed our first negative, single-issue Board campaign since the Reagan era.

This fire first struck on January 4, 2013, with an unexpected burst of lengthy, anti-Columbia Pike streetcar rhetoric from behind the dais, at the traditional and, heretofore, cordial and pro-forma New Year’s Day, Board Meeting.

(Interestingly, at the Dec. 17 swearing-in ceremony — only 18 days earlier — this new Board member spoke not one word of the streetcar.)

The person behind this ire had turned sharply against the Democratic party from which she sought and received its 2012 County Board nomination, and — just weeks before — was elected under the label, Democrat.

Then began a campaign crafted to split our County’s sound and consensus-building leadership.

She used her Board status and media-savvy persona to construct a negative, single-issue strategy, which appeared to be opposition to the Columbia Pike streetcar project.

This strategy — call it the “Party of No” — viewed in the wake of last month’s election, now seems to have had, as its ultimate goal, the election of a candidate in direct opposition to this Board member’s Democratic party.

And on Nov. 4th a small minority — 21 percent of registered Arlingtonians — voted for her winning candidate.

They were voters who:

- could afford to take time-off to vote on election day,

- had the means to get to the polls,

- had the ability to obtain the requisite photo-i.d. cards, and

- heard and believed the negative clank of the “No Party.”

However, “No,” centered on one person and her electoral scion, has no deepened roots.

Those who’ve seen Columbia Pike traffic, and those who live and work along The Pike, know that the centuries-old thoroughfare is a more vehicle-strained transportation corridor than Wilson Boulevard, and has been strained long before Metro planners created the “Rosslyn-Ballston corridor.”

We in North Arlington have that fast-paced Metro — tunneled beneath Wilson, under the “corridor” — around which new merchants have blossomed and ever more residents thrive at every station stop.

With its snap, post-election decision to cancel all streetcar contracts, has our Board again made solid mass transit for South Arlington but a pipe dream?

These post-election days have been a sad, sad time for citizens and fair-minded policymakers, alike, in Arlington County, Virginia.

We cannot allow our County to be overcome by the dark clouds of the single-issue “No Party,” which, as is written in Ecclesiastes, has used its campaign as a “time to tear down.”

Arlingtonians have always had pride for our Arlington Way: propose, discuss, listen, cooperate and reach thoughtful consensus.

Now is the time to prepare for a New Year, a new “time to build up.”

Choose YES for those who have devoted years of open, all-inclusive meetings, planning sessions, budget talks — formal and informal — to prepare this well-designed mass transit project for the Pike.

YES for unity.

Let’s build a positive campaign for action.

Let’s re-cultivate for 2015.

Let’s ALL restore the bloom of hope for all of Arlington.

Fannie Lou Hamer

Tuesday, September 2nd, 2014

In 1963 I wondered, “What did Martin Luther King mean, when he said, ‘Free at last’?” because, I thought, “Black people are free, aren’t they?” If you ever thought that way, then read this, please. Fannie Lou Hamer tells you just how “free” a black person was. Was?

Fifty years ago — on August 22, 1964 — a dramatic appeal was made to the Democratic National Party, at its national convention in Atlantic City, to seat African American Mississippians as that state’s delegates to the convention; instead of the all-white, segregationist delegation.

The most powerful testimony was given by Mississippi sharecropper, Fannie Lou Hamer. Her speech — spoken, not read — says volumes about the horrific treatment African Americans have suffered from hundreds of years of slavery, terror and discrimination.

This short introductory video (also at https://www.youtube.com/watch?v=07PwNVCZCcY) gives the context for Ms. Hamer’s testimony, including how then-President Lyndon Johnson halted the broadcast of Hamer’s entire speech, for fear of its impact on white voters.

And this is the link to her full testimony, as spoken and transcribed:

Fannie Lou Hamer went on to become a member of the Democratic National Committee from 1968-1971, and a delegate to the Democratic National Convention in 1972.

Fannie Lou Hammer died in Mound Bayou, Mississippi, on March 14, 1977. She was 59 years old.

    As we press other nations to have democratic elections, we still see — in the United States of America — attacks against the right for which Fannie Lou Hamer was terrorized, when she dared to seek it, more than 50 years ago.

Driving While Black

Friday, May 30th, 2014

This column is re-posted in memory of Calvin Milton Jones, who died three years ago, May 25, 2011.

“Has that ever happened to you?”

His face looked at me with the most serious expression I’d seen from this gentle man.

“Three times,” he said.

My friend, the late Calvin Milton Jones, had just sent me a copy of Dick Gregory’s talk to a Tavis Smiley “State of Black Union” convention center audience. Gregory, the comedian and activist, wondered aloud, that if Bill Clinton was truly “our first black president,” would he know https://www.youtube.com/watch?feature=player_detailpage&v=OJcUM3qM4GU#t=247 (at 4 min,20 sec.) how it felt to be a black man, driving down the road, and hear a police siren:

“Mr. President, do you know what it feels like to be a black person, to be a congresslady, to be a lieutenant governor with 12 doctor’s degrees, and driving down the street, and hear the police siren, and you start squeezing that steering wheel tight, and they pass by you, and you Thank God! Damn! You didn’t do nothin’ in the first place. Do you know what it is to be black?”

The primarily black audience was in howls, cheering with a standing ovation at Gregory’s presentation. And I realized then that the expression, “driving while black,” was so real and so common that an entire audience of hundreds had reacted, knowingly and in unison, with raucous laughter at Gregory’s searing remarks.

After I watched it, I walked over to Calvin’s office and asked him, “Has that ever happened to you?”

He looked me straight in the eye, “Three times” … on the way to and from Washington and his hometown in North Carolina.

So this gentle and generous man … who arrived at the office at close to five o’clock every morning — even the day before he died, sick with pneumonia — to turn on the lights, make the coffee, check the phone and computer systems, arrange the conference rooms to be sure everything was in place for the days’ meetings … told me, with those words, that he had been stopped by police officers on three separate occasions, just because they knew they could taunt another black man.

This man, Calvin Milton Jones … who wouldn’t harm a soul, who cut all the lawns in his neighborhood, because he didn’t want it to look unkempt; who, unasked, often waxed neighbors’ cars; and who would give you the shirt off his back, if you were in need … this man had been pulled over three times for no other reason than the color of his skin.

Imagine how it must feel to look up into the eyes of a uniformed man, who, you and he know, could change your life in an instant.

And now we have young Trayvon Martin, killed by a single shot from the gun of a self-appointed ‘neighborhood watchman,’ who said Trayvon was, “suspicious … looks black” and, chasing Trayvon against orders, told 911, “They always get away.” But “they” (Trayvon) did not get away; and the man who hunted him down wasn’t even arrested.

Walking while black?

Author Donna Britt, commenting on the shooting death of Trayvon, said, “I don’t know what this child could have done to be safe, except not be black.”

Being, while black.

These two men, going about their business, are stopped for being “suspicious,” for being black men living in the world’s lone superpower; which the rest of us tell ourselves is “the land of the free” … the “sweet land of liberty” … that exists, “under God … with liberty and justice for all.”

Perhaps it is … for some.

Rebuild Infrastructure — Vital to Our Nation

Wednesday, April 23rd, 2014

When President speaks of “rebuilding our infrastructure,” this is what he’s talking about:

Bridges cracked and rotting, that will eventually collapse: Seattle, Minneapolis, Oklahoma.

Overcrowded, outdated, under-equipped and understaffed public schools.

Sewers that leak into water or blow up manholes,

Sewage treatment that is beyond capacity,

Water systems unable to safely carry potable water through pipes that constantly fail,

Inadequate Internet access,

Insufficient housing for each man and woman and child in this ‘greatest nation on Earth’ country.

There’s work to be had, if our lawmakers have the sense of purpose and political fortitude to keep our people alive, well and hopeful.

And those women and men, who can do the the jobs of rebuilding, would work once more; designing, manufacturing and installing the the public infrastructure that keeps cities and towns — and the people, rich and non-rich who live in them — safe, secure and able to thrive.

“Return on money,” is not the purpose of the United States of America nor its Congress.

“Promote the general Welfare” is.

Where Have All the Factories … And Their Jobs … Gone?

Wednesday, February 26th, 2014

Feb. 25, 1992 — General Motors announced it will close 12 more factories, ending work for 16,000 employees. A total 74,000 men and woman will lose their GM jobs by 1995, as 21 factories cease operation.

Apr 9, 2002 — The Levi Strauss Company, which has closed 24 factories over the past five years, is set to shutter six more. As of this closing, a total of 13,000 workers will have lost their Levi jobs. Among the new shutdowns is a factory in San Francisco, where workers have toiled for Levi Strauss since 1906.

In April 2012, the host of a PBS documentary, “Made in the U.S.A.”, used a stunning graphic that showed a U.S. map with countless clusters of dots that nearly blackened huge regions of our country. Each dot represented the work-sites where 1,000 people labored in a factory that existed in 1992. The dots seemed countless.

Then, with dramatic fanfare, the host brought up a second U.S. map, which showed where each of today’s 1,000 workers-per-dot toil. One third of the dots swept off the screen. Six million jobs, he said, had vanished.

Next, a musical swoon uncovered another U.S. map, in which those shrunken clusters of dots had morphed into three dimensional towers. Instead of showing just where fewer people work, these towers represented the value of the products made at each tower.

We need to shift our thinking of work, the host knowingly proclaimed, to a new paradigm based on hard economic facts. Instead of employees, when we should look at our nation and that map “in terms of production, rather than employment.”

Why? The narrator — with great flare — explains that our shrunken workforce assembles, at fewer work sites, products worth double the value, of what was made by the larger, 1990s, workforce.

“Workforce” being a nondescript term otherwise known as people — mothers, fathers, daughters, sons, aunts, uncles, nieces and nephews — who stand or sit in a factory or office, usually earning far less than the legally-protected, contract-negotiated wages and hours our parents worked.

But by 2012 six million fewer men and women went to work at a regular job, while our population has increased by 59 million since 1992. And now a total of 10.236 million — that’s ten-million two-hundred thirty-six thousand individual adult human beings — are still unable to find a place in the workforce of the United States, the world’s largest economy.

Why? Manufacturers used free trade agreements, the most powerful example of which is NAFTA, the North American Free Trade Agreement, to manufacture their products — cars, major home appliances, construction equipment, clothes, televisions, radios, computers, computers, machine and electronic parts and most of our ‘stuff’ — with workers in plants set up “off-shore” in other countries, leaving fewer stable manufacturing jobs in the United States; the kinds of jobs that were the basis of our middle class.

Even telephone assistance positions — ranging from trouble with your cable TV, to figuring out who owns your home mortgage — have been deported from our country to places termed call centers, which were made possible by the electronics we invented.

Companies that stamp their U.S. trademark and brand name on a product get the benefit of that United States name, even though the product they sell could likely be made anywhere in the world.

That leaves the question, where are those people, the ones whose dots have left the map, supposed to work?

In part-time, no-benefits, low-paying jobs? That’s where 2012 job growth took place, according to The Wall Street Journal.

The businesses now experiencing major growth in jobs? Temporary employment agencies, again, as reported by The Wall Street Journal.

Meanwhile our national legislature, the Congress, which exists, in part, “to promote the general Welfare” (Constitution of the United States of America) can’t produce any major legislation to expand the economy, because of its obsession to reduce what our government spends, even when that obsession hurts those who can’t find work and those who are in hunger.

The real goal of those who seek to focus on cutting government spending: ensure the continued growth in wealth of banks and major corporations, because they pay for Congressional attention.

History shows that same extreme greed and extreme wealth occurred in an earlier era, when a powerful few acquired virtual control of our national government, which gave deference to corporate interests, adopting a policy known as “laissez-faire.”

What kind of moral compass do today’s elected officials have, that they would abandon the startling number of us who still — despite all the talk of the nation’s “recovery” — feel economically insecure about the future?

The factories are gone, and sustainable employment — for men and women who want to join the middle class — is fading. There is no recovery for the average U.S. worker, and jobs continue to be shipped out of the United States

Are we content to do nothing and allow the wealthy to own our government again?

The only power that can overcome money is the vote each person — working or not — casts on Election Day. Yet the power of money seems to have reached down even to the polls, where extremist allies in the state legislatures are seeking to block access to the voting booth from the poor, the elderly, rural residents and those who have been threatened in the past — persons whose voting rights were made weaker by the United States Supreme Court.

Stable work for millions seems out of reach. Who will stand for those who ask only for a chance, a fair-paying job that lets them join, or stay in, the middle class, and for his or her Constitutional right to cast a vote?

And if we can’t regain these basic expectations as citizens, then, who are we?

1492: Spain’s Monarchs Bless Columbus, Expell All Jews

Tuesday, February 4th, 2014

In October of 1492, Columbus may have sailed the ocean blue with the assistance of Spain’s Ferdinand and Isabella. However, just months before in that same year, 1492, the royal pair also expelled their kingdom’s entire population of Jews. Two-hundred thousand human beings mercilessly ordered out of their homes, schools and all that they loved, simply because they were Jews.

Imagine entire families struggling to escape, their lives at stake, on foot across the formidable Pyrenees Mountains, where untold numbers perished; or on boats, where many captains threw Jewish passengers into the sea.

That monstrous act in human history received -– in my recollection -– not one mention in my Catholic education. Never, in 14 years. I daresay few public schools taught the other side of 1492, either. For us in the United States, 1492 is viewed as the hallmark event of our foundation. For Jews — away from our eyes and suffering in Europe — 1492 visited upon them the massive brutality of a heinous state crime, committed on them in the name of religion.

Their expulsion from Spain came after Jews were excoriated during Ferdinand and Isabella’s quest to secure the dominance of their Catholic faith by means of the Spanish Inquisition, an offshoot of earlier Inquisitions.

This horrific moment in recorded history stands among Jews as second only to the mass genocide of the Holocaust.

Another rarely taught act of treachery against Jews occurred in 1543, when the venerable Martin Luther spewed vicious anti-Semitic rhetoric in his book, The Jews and Their Lies.

So the seeds of the world’s most inconceivable, calculated human slaughter were sown into hateful antisemitic minds well in advance of the 1930s, by means of Martin Luther’s vitriolic pen, and by the forced mass expulsion rendered by the murderous King Ferdinand and Queen Isabella of Spain.

Who will teach our children of these events and writings? Visit the United States Holocaust Memorial Museum — ushmm.org — for the documents which verify this article and for suggested curricular material.

To understand the depth and horror of the Holocaust, hear a survivor’s intimate, first-hand story at one of the Museum’s riveting First Person interviews — from March through mid-August, 2014 — in the Museum’s Washington, D.C., auditorium.

After the Holocaust, Jewish leaders told the world, “Never Again,” a challenge all of people of conscience must embrace.

At the United States Holocaust Memorial Museum, we are urged to teach the Holocaust, so that we, our children, and our fellow citizens will never forget what happened; when the world merely watched.

Your visit to the museum and to its website will grasp your moral core, and compel you — when the world faces any genocide — to act.

Currier & Ives’ Secret - Racist Prints Sold Well

Tuesday, July 30th, 2013

What is your mental image, when you see the words, Currier & Ives?

A snow scene? A sleigh? The verdant countryside?

You will think differently, in a moment.

Admirers will be amazed and disgusted to know that of the pair’s most successful sales were 75 separate color lithograph images, which hatefully portrayed African-Americans in the most horrific examples of racism imaginable.

[These prints, and the stories behind them can be seen at Booktryst.com in its "The Dark Side of Currier & Ives" entry.]

The Ohio History Center has copies of these eye-opening prints in its “Controversy 2: Things We Don’t Talk About” exhibit room. You will leave it with a new view of Currier & Ives.

My wife and I discovered and were stunned by their ‘artistic’ shame, on a recent visit to Columbus, Ohio.

270,000,000 Guns For A “Well-Regulated Militia”?

Friday, April 12th, 2013


Our nation contains 270,000,000 privately owned guns.

Our population is 316,000,000 people.


India contains 40,000,000 privately owned guns.

India’s population is 1,200,000,000 people.


Our gun death rate is 10.3 persons killed per 100,000 persons.

India’s gun death rate is 0.55 persons killed per 100,000 persons.

[Sources: Guns - GunPolicy.org, Populations - CIA World Factbook]



Amendment II to The Constitution of the United States of America reads:

A well regulated Militia, being necessary to the security of a free State, the right of the people to keep and bear Arms, shall not be infringed.



Note: The homepage of the National Rifle Association does not contain the words of Amendment II. Perhaps it’s due to those pesky words in the first part of Amendment II.


Because the only “well regulated militia” we have in 2013 is each state’s National Guard.

The National Guard, the oldest component of the Armed Forces of the United States and one of the nation’s longest-enduring institutions, celebrated its 370th birthday on December 13, 2006. The National Guard traces its history back to the earliest English colonies in North America. Responsible for their own defense, the colonists drew on English military tradition and organized their able-bodied male citizens into militias.

The colonial militias protected their fellow citizens from Indian attack, foreign invaders, and later helped to win the Revolutionary War.

Following independence, the authors of the Constitution empowered Congress to “provide for organizing, arming, and disciplining the militia.”

However, recognizing the militia’s state role, the Founding Fathers reserved the appointment of officers and training of the militia to the states. Today’s National Guard still remains a dual state-Federal force.

[Source: The National Guard]


How is it that a gun manufacturers’ lobbying group has convinced Congress that each person in our nation has a constitutional right to own and use a gun, when the only persons authorized by our Constitution are those serving in our militia: The National Guard?

A Tick, Huge Rash, Lyme? Medical Mistakes, 10 Years of Pain.

Sunday, September 30th, 2012

July 29, 2003

I was a happy and fit 57 year-old in July of 2003. I’d lost 125 pounds and was in the third year of my recovery, enjoying the best physical and mental health of my life. That soon ended when I found a tick on my ankle. It was the evening of July 29,2003.

On that Tuesday, after returning home from work, I was changing my shoes and noticed a black spot just below the top of my sock, on the outside of my right calf, near the ankle.

It appeared to be either a mole or a piece of dirt and I began to pick at it. Then I thought I probably shouldn’t, because a mole should not be toyed with. But the dark bump began to come loose, so I continued to pick it off my leg. When I had it off, I held it up to my face and then noticed the squirming legs of a tick.

I tried to crush it, but could not. It was about the size of a pencil eraser and appeared to be light-to-dark brown on top with what may have been spots.

The tick concerned me, but not enough to seek any kind of treatment. I had no pain associated with it, nor any itch.

August 2003

Three days later, on August 1, I awoke with a terrible head and neck ache, along with general pain throughout my body. I remember thinking about meningitis, because of the intense pain in my neck. I spent most of the day in bed, curled almost into a fetal position, because the pain was so severe. That lasted all day Friday, but I was fine the next day.

Because of my neck pain on Friday, and knowing I’d been bitten by a tick, on Saturday morning I called the HMO we used via my wife’s employer. We were told to come to urgent care facility for an evaluation, because my complaint involved a tick.

I brought along the dead tick, which I’d placed in a baby-food bottle. The doctor at Kaiser took one look at the tick and said, “Well, that’s not a deer tick, so you don’t have to worry about Lyme disease.” She explained that the tick which causes Lyme is the size of a pencil point, and the tick I’d brought was much too large.

As a native of Illinois, I associated only one disease with ticks, and that was Rocky Mountain spotted fever. Lyme was foreign to me. The doctor had blood drawn to test for Lyme, and I was sent home with no specific instructions.

Since I was feeling fine, I had no reason to believe I was ill.

Over the next few days, however, a red spot appeared above the outside of my right ankle, at the site where I’d removed the tick. I think I noticed it on Tuesday, August 5, which was exactly a week after I’d found the tick.

As those days passed, I watched the red circular area increase in size from that of a dime, to a penny; then a nickel and, finally, a quarter.

By the end of that week the skin inside the red area began to fade from red to pink to skin color, while the outer edge remained pink — giving the circle the appearance of a red halo surrounding a tiny black dot.

At no point did this area itch or cause any pain. I’d only discovered it by chance.

I called my wife’s HMO, explained that this red circular rash had developed, and asked if I should postpone the two-week car trip to Illinois and Wisconsin that we were scheduled to begin on Saturday, August 9.

I was assured, over the phone, that our plans need not change; because, even if I did have a tick disease, two weeks away should be no problem.

By the time we’d arrived in Springfield, Illinois, for our visit, the fading circular halo had nearly vanished, and I’d gradually become ill. I was weak and had general body aches similar to the flu.

After my second day in bed with these worsening symptoms, my wife called the HMO. The doctor assigned to my primary care instructed my wife to take me to the HMO’s nearest facility, which, we were told, was in Ohio. My wife pleaded for help, explaining that I was quite ill in Springfield, Illinois. Still, she was told the HMO could take care of the problem only in Ohio, since we were out of our home coverage area.

Frustrated, we decided to act on our own in Springfield. We would use my secondary, individual insurance through my employer, so my wife drove me on August 13 to the Springfield Clinic “Prompt Care” facility, where I was seen by the doctor on duty.

She listened to my account and ordered blood and urinalysis tests, which detected no illness, but did show a slight reduction in my white blood cell count. She decided to put me on doxycycline for ten days. When we left Springfield for Madison, Wisconsin, on August 15; I still had the flu-like body aches, weakness and a headache. In addition, numbness occurred on the underside of my arms.

In Madison I continued to feel very weak. My abdomen was a bit sore, I’d become weak, and had a debilitating headache. I was in bed with these symptoms at our motel room August 16 and 17, ruining the trip to see our daughter. I called the primary physician I see under my employer’s plan on the 16th, and was told that if my headache persisted and I had a fever above 100.5 to go to an emergency room immediately. I had no fever, so we continued on our return to Virginia.

On the 17th I was surprised to discover another, huge red circular area on my lower right abdomen.

PHOTO Tick Wound Blue Outline– FINGERS near BLUE PEN CIRCUMFERENCE

[With a pen, we drew a border around it, to see if it would get any larger.]

It was much larger than the one I’d had on my ankle. This area was about the size of a half-dollar and deep scarlet in color, with a strange red curl extending from the top. The area was not painful and did not itch. However, when I applied pressure on it, I felt nauseous for several minutes afterward.

We spent the night of August 18 with my older brother in Chesterton, Indiana. When I awoke on the 19th, my body was jerking, as though I had a chill, but much more violent. My temperature was normal, and after an hour or so the jerks dissipated.

On August 20 the large red area on my abdomen had grown in circumference (the size of an old silver dollar) and even deeper red in appearance.

PHOTO Tick Wound Size Compared With Penny– PENNY NEXT TO SILVER DOLLAR RED AREA

We decided to stop at an urgent care facility just off of I-70, attached to St. Francis Hospital in Dayton, Ohio. There I saw a physician who was mystified by the rash, researched possible causes and found none.

She ordered blood work and thought perhaps the scarlet abdominal rash could have been caused by a drug reaction or an infection. She told me to stop the doxycycline and gave me a prescription for amoxicillin.

At the suggestion of my eldest brother, a pathologist, I continued on the doxycycline and began taking the amoxicillin. Initially, when we stopped by his home on our way to Springfield, he said I couldn’t have Lyme, because the tick that spreads it is nearly invisible. However, as we talked with one another by phone and he followed my description of my symptoms, my brother began to do some research. He found that the engorged female deer tick is visible.

“Nick,” he said, “you have Lyme disease. You’re a writer; keep notes and write about what’s happening. You’re going to educate a lot of doctors.”

On August 21 I discovered that the “curl” at the top of the scarlet abdominal rash had developed into a faint circle. Looking more closely, I could see the outline of two pink circles sitting above the abdominal rash. In effect, the large scarlet rash had the appearance of medallion suspended from a double-rounded pink chain.

On the morning of August 22, I awoke with my body jerking. This time the jerking was much more intense and lasted much longer than the jerking I’d experienced on the 18th. After an hour or so the jerking subsided. Again, on the morning of August 23, I woke again with the jerking (my body reacted as though it had been shocked repeatedly by a cattle prod). A similar event occurred later that evening. Clearly, these violent episodes were not “chills.”

By August 25 the jerking came and went throughout the day. I saw my non-HMO physician. She ordered an MRI, and gave me a referral to a neurologist.

I had the MRI on August 27 and saw my physician again later that day. She looked at the MRI and said it appeared normal, but wanted to wait for the radiologist’s report.

She then said the jerking could have been caused by a drug reaction, that the Lyme test which had been performed at the HMO had been negative and that the tick was too large to be a deer tick. She also said that even if I did have Lyme, I’d been on antibiotics long enough to have killed the bacteria that might have been involved.

I felt very confused. I saw the neurologist on August 28 and, after checking my reflexes and looking at the MRI, he said everything appeared to be normal; though he was puzzled by my body jerks, which were continuing to take place throughout the day and night. He ordered a spinal tap and an EEG.

At the suggestion of my wife, I called my physician and requested referral to a Lyme specialist. Her office called back and gave me a referral to an infectious disease specialist in Annandale, Va.

On the afternoon of August 29 I was examined by the specialist, who, upon listening to my history, viewing the abdomen photos, and observing my non-stop body jerks, said he felt I had either Lyme or another tick-borne disease. During the course of the exam he later said he was sure I had Lyme disease.

He ordered a 21-day course of intravenous antibiotics (Rocephin) and said I would begin to feel better by the second week and that the disease should be cured by the end of the antibiotic therapy. I was relieved that we finally had found a physician who seemed to know what had been taking place in my body. He suggested I stay home from work the following week.

I experienced considerable jerking of my body on Sunday, August 31.

September 2003

On Monday, September 1 the jerking stopped, but I experienced pain in my head, neck, shoulders, arms and legs. On Thursday, September 4, I went to bed around 9:30 p.m. with a severe headache and neck ache and jerking. At about midnight I awoke with even more severe head and neck pain.

Throughout the week of September 7, I continued to experience the jerking, weakness and body aches. On the night of September 12, I experienced violent jerking of my body, a sensation of pressure on the top of my head, and a severe headache. I took an endocet, which had been prescribed for the pain. While the jerking stopped, the pain remained. I slept little that night.

I slept well the night of September 13 and experienced no jerking. The next day, however, after eating breakfast about 9am, I became very weak and my body began to ache and jerk. I went to bed and slept for about two hours.

Upon awakening I found that the jerking had stopped and the pain lessened. I still felt weak, with just enough energy to write this report. It is now 5:16 pm on September 14, 2003. I am a bit dizzy and have numbness on the underside of my arms and hands.

At the end of September 2003, my symptoms seemed to have been abated, and my infectious disease physician declared me cured of Lyme.

October 2003

Total healing seemed to have been complete by the first week of October, 2003. No pain, no tingling/numbness, no body jerks.

November 2003

Approximately seven weeks later, in late November, 2003, the jerking symptoms came back. Puzzled, I returned to my infectious disease doctor, who seemed perplexed. Asked if he had ever experienced a recurrence of Lyme, he said, “Never; and I’ve been in practice 17 years.”

December 2003

Nevertheless, he placed me in Fairfax Hospital on December 9, 2003, and began a new course of I.V. Rocephin. At the end of that first night in the hospital, my jerking disappeared.

However, next morning I awakened with the severe body jolts again. The infectious disease specialist had my case reviewed by a psychiatrist and neurologist, both of whom could find nothing that would explain my symptoms. The psychiatrist said my behavior could not be linked to the medications I was taking for psychiatric reasons. The neurologist’s exam, which included a spinal tap, showed no abnormalities; and no evidence of the Lyme spirochete.

The infectious disease doctor ordered a ‘PICC’ line (peripherally inserted central catheter) to be inserted into my lower right arm and threaded up into my chest cavity, so the next round of antibiotics could be delivered directly into a major vein near the heart. He told me to check in with him the next day.

At his office the following day the infectious disease doctor again reviewed the medications I am taking for psychiatric illnesses. He changed his assessment and told me the violent jerks I was experiencing were “clearly electrical,” not related to Lyme or any other disease, and suggested I go see a psychiatrist and neurologist.

My wife and I were both stunned. I’d suddenly been dropped by the physician who had seemed to be on the right path. Rather than go with the evidence before him, he said he’d never seen a recurrence, reviewed the medications he already knew I took for my severe depression, and appeared to be giving me a ‘go and sin no more’-type dismissal.

A few days later, the severe joint, muscle, head and neck pain returned; so I made an appointment to see the same doctor. Despite my report of intense pain, he repeated, “We had an agreement; you are to see a psychiatrist and neurologist,” and expressed no further interest in my case.

In the ensuing months the pain returned to all joints, neck, head, and extremities; gradually worsening. The body jolts became quite violent.

I arranged to see the neurologist who had examined me at Fairfax Hospital. She, too, was puzzled by my condition, but wanted to help me find the cause and get treatment.

She referred me to a specialist at Johns Hopkins Medical Center. However, that physician merely reviewed my lab results (all had been negative for Lyme) and said, “You don’t have Lyme disease.” I told him I was not trying to prove I had a particular disease: just that I was ill, my condition was getting worse, and I needed help. He said there was nothing he could do.

My neurologist then referred me to a specialist at the University of Virginia Medical School, who also reviewed my labs, said I didn’t have Lyme and whatever I did have would not be known for “20 years or so.”

2004

Next I looked online for anyone who may have worked on a recurrent tick disease, and found a physician who had published a study on the recurrence of Lyme in the 1990s. She practiced and conducted research at the State University of New York at Stonybrook. I quickly made an appointment to see her.

We booked a train to New York, where we transferred at Grand Central Station to a commuter train that took us to the SUNY Stonybrook hospital on Long Island. When our appointment was called, the doctor reviewed my history, dictated her report to my neurologist, then examined me and said her conclusion was that I didn’t have and never had Lyme disease. Despite my plea that I was not trying to prove Lyme, just get help; she said she felt that my symptoms would eventually “clear-up on their own.”

We returned to Arlington to report back to my neurologist. Unlike all of the other doctors we’d seen, she continued to be interested in my case, and acknowledged that I did have some disease. She also said she had to rely on “someone smarter than I am” to try to solve my case.

So, instead of taking the easy path and wishing me well, she again gave me a referral, this time to a Fairfax City (Va.) Lyme specialist, whom she said was controversial, but could possibly help me. And, to alleviate the worsening pain, she also referred me to a pain specialist in Fairfax County, Va.

I finally was ‘getting it’ that Lyme is a ‘political’ disease, because many doctors believe that the only people with Lyme were those with a positive blood test. All my tests had been negative; yet I had the tick and the photographs (thank you, Lisa and Denny) of a classic secondary circular rash.

We made arrangements to see this new doctor.

To recap: Between December 2003 and April 1, 2004, I had received no treatment for my ailment. The photo I had of the large red area with the curl was the only concrete evidence I could present to physicians … those who attempted to understand my condition and help, that is.

The new doctor listened to my description of my situation with great interest and viewed the photo. She said that Lyme was one of the most difficult diseases to verify, but that her clinical diagnosis was that I did have Lyme disease, and I needed to begin I.V. Rocephin treatment immediately.

After about a week of infusion at her office, I was instructed by this new doctor to go to the Virginia Hospital Center in Arlington, Va., to have a Bard Mediport implanted in my chest. This device — similar in concept to the PICC line — would allow me to infuse I.V. Rocephin into the major veins near my heart. This was done daily, in our own home, for seven months.

At the doctor’s suggestion, I had my tonsils removed, with the hope that the spirochete might be detected in them. Alas, no spirochete was present in the tonsils.

This new doctor explained that the Lyme spirochete bacterium “hides” in other cells. [This "hiding" concept was difficult for me to understand, until I read this article, one of the most informative I have seen, and made available by a Lyme support network.]

As treatment continued — with my doctor adding more medications to fight the infection — my situation continued to deteriorate. Two months later (October 2004) the doctor noticed my severe sweats/chills and heard my complaint of painful and very weak legs when I tried to climb stairs, whether at home or at a public building.

She began to suspect a babesia co-infection and commenced treatment with Mepron and Artemisia to attack not only the Lyme but also babesiosis. She then halted the Rocephin. She believed beyond doubt that I did have Lyme and babesiosis, but was concerned that my condition did not seem to be improving after nearly 9 months of I.V. treatment.

Again, her diagnoses were clinical; but my description of my symptoms left her with no doubt that I had these diseases.

Visible symptoms included loss of muscle, loss of hair on the legs, sweats/chills, some violent jerking (usually only at night in bed), extreme difficulty and pain while climbing stairs. I also experienced joint/muscle specific pain, and periods of extreme exhaustion. Another very new symptom was severe (a level of 8 out of 10) pain on the surfaces of all my teeth; both top and bottom rows. I checked with my dentist on December 30, 2004 — by then the pain was gone — and he found no evidence of dental disease and had no explanation for the pain.

On December 26 I was taken by ambulance to an Arlington hospital for what seemed to be constriction of my throat/airway. The symptom began as rough pain in the back of my throat, which spread down my esophagus. Examination found no constriction, and I realized, again, that the source of the pain was in my damaged central nervous system, not where the pain seemed to be. This sudden, spreading throat pain became a new addition to my catalog of pain.

During the night of December 27, I awoke with violent, severe chills for which nothing gave relief. Then I noticed my breathing had become alarmingly shallow. I said it felt as though I was taking only a half breath in and a half breath out; I worried that I would cease breathing. My wife took my blood pressure — with an automatic cuff — and it appeared in the normal ranges. However, my pulse was around 50 and then began to drop slowly: from 50 to 47 and then 42. I tried to remain calm and took my pulse by using the clock and my wrist.

Perhaps that distraction helped reduce my anxiety. The feeling of impending inability to breathe was quite frightening. We went back to bed; when I awoke, my pillow, cover and thick bedspread were soaked from my perspiration which apparently occurred during sleep after the low pulse/shallow breathing incident.

2005

On January 5, 2005, the pain in a.m. was severe (9) and stayed that way for hours, even though I was taking oxycontin (40mg 3x/day, prescribed and closely monitored by a pain specialist physician) each day for pain. Despite using that potent drug, there are some days when even more severe pain will “break through” between dosage times.

My physician urged me — because, she said, “We’re missing something” — to get in touch with a New York doctor who uses herbal remedies. She believed he could offer some hope to cure me.

I saw this Asian doctor on April 2, 2005, in his New York office.

Since starting use of his herbal supplements (it is now June 25, 2005) my pain has diminished to the point that I am able to go into work every day. [His treatment, in the end, did not bring a "cure."]

I still had days of pain, but the instances did not reach to the 9 level. However, I am weakening and it has become difficult to walk. I walk very slowly, at least I did yesterday and today.

The chills/sweats are gone. And I had reduced my pain meds — as of June 20 — to 40 milligrams of Oxycontin in the am and pm. I took, as needed, oxycodone (also known as Oxy-IR) for pain that often occured during the midday.

Our chief concern centered on weakness, especially in my legs.

On weekends I am frequently in bed most of the day, due to pain and weakness.

2006

A new and strange symptom has appeared: I began to have difficulty reading and concentrating at work between 9am and 11am. Frequently I became aware of these events when I noticed I had held down the key of the last letter I’d typed, so on the screen there appeared a long string of one letter — nnnnnnnnnnnnnnnnnnnnnnnnnnn, for example. Other times, I’d suddenly realize that I’d been staring at the screen, unable to move, for an hour or more. My mind was in a daze or ‘fog’ that permitted no ability to work.

To deal with this incapacitation I received permission from my boss to lie down under my office desk and nap for two to three hours. I would place a small sign on my door that read, “Please do not disturb. Thank you.” It could happen as many as three days out of five in the week. I was able to complete my work each day, but sometimes I had to stay much later than the rest of my colleagues.

2007

I saw my Virginia physician monthly, and she tried a number of medications to attack the source of my persistent symptoms.

I remained plagued by unanticipated severe jerks or jolts to my body…. sometimes in my office, sometimes in meetings… and, often, very violently in bed at night. I would awake with rapid, upper body spasms … it felt like Bam! Bam! Bam! Bam! for up to 20 times … maybe 30, before the episode stops. I took 0.5mg of clonazepam, which usually ended the disquieting symptom.

The other persistent symptoms consisted of extreme exhaustion, coupled with mid-morning double vision and the inability to concentrate. I continued to nap when necessary.

I also still had severe attacks of pain, which could reach a level of 8. I had no idea when these pain attacks might to occur, but they rarely occurred during the work week. Frequently I awoke on Saturday morning with the pain and had to rest in bed, unable to do anything else, until the pain ebbed, around 5pm or so. My pain physician said the weekend pain could be fallout from the stress of the work week on my body.

However, my situation seemed to be moving in a positive direction: the mental confusion had begun to diminish, though I still would lie under my desk for an hour some days. On Saturday, September 29, I awoke with no pain and was full of energy all day.

On September 30, 2007, I awoke with 7 pain and worried it could be another all-day bout. But the pain diminished, with some remaining in my knees, shoulders, ankles and fingers.

My pain specialist replaced Oxycontin with a single daily dose (at 5am) of Avinza — a time-release morphine capsule. Yet, still, on some days I experienced periods of intense pain, for which I may take 5mg Oxycodone, one-at-a-time, for up to four separate doses.

By 4:36pm on the 30th, the pain was marginal (3), and I was able to work on my writing with a sense of hopeful energy.

Two other milestones that week: I was able to walk the 1.5 miles to work from my house to the subway. That would have been impossible over the span of the previous four and a-quarter years. My knees ached most of that morning, but not enough to halt work; and I had no walk-related pain the next morning.

I believe my Lyme specialist physician’s treatment, though considered unorthodox by some, has brought me to this level of good health. I’m not completely healed, but there has definitely been progress, thank God.

2009

By early June of 2009 my situation seemed to be moving in a positive direction: I had just reduced my main pain medication — Avinza (time-release morphine) — from 60mg/day to 45mg/day. I had not used oxycodone for several weeks.

Then, without any warning, head/eye pain began mid-day on June 7. It progressed — to level 8 — and spread to extremities, neck, etc., and kept getting worse, despite several doses (at one hour intervals) of oxycodone. By 10:00 pm. I had to resort to another medication to enable me to sleep. Lately, my pain has been more constant, and the condition of ‘no-pain’ has almost disappeared.

On June 20, 2009, after several ‘normal’ days, pain began at 7.5 in intensity, progressed to 8, and affected these parts of my body: knees, elbows, wrists, hips, neck, shoulders, spine, ankles, fingers, palms, head, jaws, chin, temples, ears, legs and eyes. It became so debilitating that I took breakthrough medication at 5:50 p.m.

The pain can occur for no reason. I have no idea when or if this will end; I’ve long given up on the possibility of a ‘cure.’ Six years, and the pain continues.

2010

Primary symptoms: severe chronic pain, violent whole-body jerking (mostly in bed at night), occasional extreme exhaustion/inability to concentrate, and debilitating leg pain. Frequent (once a week) diarrhea led to discovery of a gluten allergy. Eventually, soy was added to the allergy list.

2011

My condition changed, dramatically, the week of July 11. I was helping to staff a legislative meeting for my education association employer and began to walk from the Senate side of the Capitol (Constitution Avenue) to the House side (Independence Avenue), about four city blocks.

After roughly 50 to 100 feet of walking, both legs were in pain, primarily deep inside the muscles in my right thigh, and then the left thigh. Walking grew more and more strained; so I headed for the subway and took sick leave for the rest of the day.

The next day (Friday, July 15) I rode Amtrak from Union Station to Williamsburg to visit my wife, who was working as a site interpreter at the Jamestown Settlement near Williamsburg.

I drove from the station to the Jamestown Settlement parking lot. After locking the car I remembered I’d forgotten something, so I turned to go back to the car. On the short (50 feet) walk back, my legs again became painful, with deep muscle pain in both thighs, a tightened feeling in the backs of both legs, accompanied by such weakness that I found it difficult to walk.

When it came time to tour the Jamestown Settlement Museum, I told my wife that I felt I would not be able to walk through it, because of the intensifying pain and weakness. So, she found a museum-provided electric cart, which I used throughout our tour.

I had never even considered use of such a device, which I associate with the elderly and handicapped.

When we later began a tour of another museum at the Yorktown Victory Center, I soon knew I’d need another electric cart. In each case I was grateful such devices were available.

In the ensuing days and nights, the pain worsened, almost exponentially. I had to use oxycodone at least three times each day and I started an application for federal medical disability leave. Retirement did not, at that point, seem to bring the thoughts of relaxation and peace I once would have expected.

September 6, 2011 — My boss at the association, after listening to my account of the Capitol and museum episodes, suggested I consider a medical leave and then reassess after three months. After that period, he said, I could apply for the association’s long-term disability insurance.

Subsequently, with the assistance of my neurologist, I was granted three months of medical leave. I also prepared documents to be submitted for the association’s two-year disability insurance.

2012

At the end of my medical leave, I retired from the association on November 18, 2011, after 26 years of service. My application for my employer’s long-term disability plan was denied by their insurance carrier. The reason? I never tested positive for Lyme disease. I’d had all the symptoms and I even found the tick; but, once again: no positive blood test means you have no evidence that you’re sick. The person handling my case was in my corner and wanted me to be granted the benefit; but it all came down to that one, fallible test, which I could not provide.

A similar application to U.S. Social Security’s Federal Disability program was initially denied. I was given the opportunity to appeal, and, to our astonishment, I received a notice that my federal application had been approved about two weeks before my 66th birthday, my full retirement date and the date on which the federal disability insurance would expire. (I was awarded a lump sum payment, which gave me disability benefits for the last few months before my 66th birthday.)

Meanwhile, the pain makes life a daily struggle. Exhaustion requires a daily 2 to 3 hour nap in the late a.m. or mid-afternoon. On a ‘pain day’ I may have to take a single oxycodone at various times to reduce the pain and help me remain somewhat active.

I’ve also noticed that I’ve become quite thin. My weight has dropped to as low as 159lbs. When this journey began in July of 2003, I weighed 183lbs.

Walking, again, can be painful and I tire easily.

On July 23, just as I was about to shut the front door of our house to join my wife for an afternoon movie date, I suddenly experienced pain around my back and midsection, which spread rapidly to my neck, eyes, head, arms legs, joints. I took an Oxycodone, but the pain continued to worsen. The date was off. Heading for a large easy chair and my iPod — filled with “healing” meditations and “space” music — I settled into pain distraction and attempted sleep, while the medication did its job.

2013

February 2 — Weight at Jan. 3 doc visit was 156. Skin is extremely thin and limp/wrinkled in arms, abdomen. Good biceps, but where’s the rest of the flesh that’s supposed support and surround them?

Cheek bones more prominent, giving a ‘gaunt’ look. Palms are deepening. All blood vessels appear as on top of skin, not under it. (Slight exaggeration, but that’s what it seems.)

2014

April 1 — Weight is now stabilized at around 170lbs, but other symptoms have become more worrisome. Touch to my palms and scalp can bring pain. The skin across my forehead — beyond the temples and above the hairline — can be marked by as many as six deeply set furrows.

Nearly every part of my body — except — continues to recede at a steady, glacial pace. More prominent each week are the bones in my hands, wrists, forearms, face, ankles, toes and pelvis. These imperceptible changes have occurred over the length of my journey, and have been, until recently, more discernible to me than to others.

And the pain … the relentless, unyielding pain … maintains its solid grip.

Where is this heading? Each day is a gift. Each hug is precious. Each kiss, divine.

********************

I am indebted to my amazing wife — my life’s partner, soul mate, lover and mother of our four daughters — whose smile and hugs and sturdy right arm make it possible for me to live as ‘normally’ as possible. She has adjusted her life to care for mine. She reads voraciously in search of new paths to pursue; new hints for answers. She has devoted this, the first year of her retirement, to assure that I arrive at health appointments — at lease one each week — on time and monitored. What we’d both hoped would be years of relaxation from work and travel for fun has, instead, yielded to a period of much more limited goals.

She has never given up and has always encouraged me to seek a solution that could end all the ills befallen us since July 29, 2003. I can never imagine life without her.

This diary of Lyme is dedicated to her: Mary Ann Templeton Penning, the love of my life. She and our four daughters — Marni, Rebecca, Lisa and Anna — make me whole and bring total joy.

Pain may interrupt, but their love is with me always.

03/16/14 — 8:00pm

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How to Stop ‘The Wrong People’ From Voting

Wednesday, July 11th, 2012

We are excellent in advocating and insisting on free and fair elections in the nations we conquer or are attempting to overthrow. The so-called ‘purple thumb‘ elections.

But when it comes to balloting here, several governors and local authorities are passing laws and adopting policies designed to prevent certain groups from voting: the poor, the black, the brown and the elderly.

It’s called voter suppression (See “Unconscionable Crime”), and it’s ripping the threads that hold together our democracy.

Lincoln urged, after Gettysburg, “that we here highly resolve that these dead shall not have died in vain — that this nation, under God, shall have a new birth of freedom — and that government of the people, by the people, and for the people, shall not perish from the earth.” [ Abraham Lincoln Home Historic Site ]

We are witnessing acts designed to stop some of us from exercising our fought-for and died for-right to choose our leaders.

And, and as Eugene Robinson reports (above, in “Unconscionable Crime”) a five year Bush Justice Department mission to find voter fraud resulted in just 86 convictions.

If this goes unchecked, will we look anything like Lincoln’s vision?

The nation needs to ask, “What are we becoming?”

***************
Additional References:

2006 Justice Department Draft Report on Voter Fraud

Panel Said to Alter Finding on Voter FraudNew York Times, April 11, 2007

In 5-Year Effort, Scant Evidence of Voter Fraud (120 people charged, 86 convicted) – New York Times, April 12, 2007